Read my story about being a young person with a chronic illness. Living with Neuromyelitis Optica - a rare autoimmune disease.
For the last 4 years I’ve been dealing with something called adrenal insufficiency caused by my steroids. It all started with increasing my immunosuppressants. My body needed more immunosuppressants but it made me severely anemic so I had to start steroids to move on to another drug. Bare in mind before this I was mostly … Continue reading My Adrenal Insufficency
Spoonie Essentials There’s so many smal things in my daily life that help me so much. It’s taken a lot to find these tools and I’m so glad I have them now! So here’s the things which help me! Electric Heating Blanket I have had an electric blanket for a few years now and it’s … Continue reading My Spoonie Essentials
COMPACTCATH review I was recently sent some free catheters to try & review. The brand is called compact cath and they make well, compact catheters. These catheters are different to other designs I’ve seen since they come in this kind of disc shaped spiral which makes it super small and flat in your bag or … Continue reading Review: COMPACTCATH
Lessons I’ve learnt through my ED recovery thanks to the body acceptance movements: * BEING FAT IS OKAY. * Not all overweight people are unhealthy. Your BMI does not dictate how good or bad your vitals are. (Read about Health At Every Size) * Fat is just a descriptor. The word fat is only bad … Continue reading Lessons In Recovery
This week I finished reading Brave by Rose Mcgowan, an incredibly powerful important book. Rose is an amazing writer with a great perspective on the world. Showing examples of how systemic sexism has women trapped in situations seen as normal in our culture. Not only speaking about the Harvey Weinstein, she discusses her whole life, … Continue reading Review: BRAVE by Rose Mcgowan
TOGETHER WE ARE STRONGER.
March is Neuromyelitis optica awareness month. This is the disease I have and I would love to share some brief info to educate you.
In honour of eating disorder awareness week ( a little late) I’m chiosingbtonshare myneating dsirsoer Story, what it was like mentally and my recovery and appreciation of the body acceptance movements.
Let’s be honest, showering when you have chronic fatigue is rough. It becomes a dreaded chore. I know for me, I don’t shower as much as I’d like to because I sleep through the times I’ve planned too, someones not always around to help, and just generally too exhausted. But friends, I have a life … Continue reading Nilaqua Body Wash review
I love YouTube and decided to write a list of Youtubers with chronic issues because representation is important.