Read my story about being a young person with a chronic illness. Living with Neuromyelitis Optica - a rare autoimmune disease.
Yesterday I entered my new home for the next 3 months during self isolation, a large open farmhouse style apartment with dark wooden beams lining the ceiling and open sky lights bringing the outside inside. It is my cozy sanctuary. The corner sofa has a mountain of pillows to drown in and a soft but… Continue reading Relying On Myself
The year is almost over and I’ve officially completed my Goodreads reading challenge of 15 books. I have read 22 books! So I’ve decided to share my favourite books from 2019 with you all. Feel free to share some of yours, or your favourites of all time. I’m always looking for new books. Every… Continue reading My Favourite Books Of 2019
In honour of world mental health day I want to talk about the greyzone of depression When people ask me what depression feels like I never know what to say. It varies. Sometimes it feels like I’m drowning and I can’t escape, others there’s just a unshakeable sense that everything is pointless. For me it… Continue reading The Depression Greyzone
i turned 18 on the 14th of September. I feel so weird about it. I can’t stop thinking about my future now. For the last 5 years I have been mostly bedbound. Only getting up for the toilet and appointments due to chronic fatigue from adrenal insufficiency and steroids. After coming off steroids in the… Continue reading Progress Is Possible
In honour of sexual health awareness week I’m writing about disability and sex. I’ve spoken to many of my disabled peers and complied some information and tips to share with you all. Intimacy can be a barrier for many people but especially if you’re disabled (see my last blog post). So here is some advice!… Continue reading Tips On Sex And Disability
Today I’m sharing my first ever guest post! Written by a blogger with EDS. Naomi is the author of http://www.diaryofazebra.com where she writes about chronic illness and features guest bloggers. If you’d be interested in having a guest blog on my site email me email@example.com The emotional toll of being chronically ill is huge.… Continue reading The Emotional Toll Of Being Chronically Ill
In honour of U.K. Sexual Health Week September 16-22nd, I am writing a few posts discussing the barriers people with disabilities face to intimacy - not just sex but general relationships. There’s many things that complicate intimate relationships as disabled people so here’s some, please check my blog again later in September to see the… Continue reading Barriers To Intimacy With Disabilities
Change hope and uncertainty are scary things that come up a lot during life as a chronically ill person. So let’s talk about it.
For the last 4 years I’ve been dealing with something called adrenal insufficiency caused by my steroids. It all started with increasing my immunosuppressants. My body needed more immunosuppressants but it made me severely anemic so I had to start steroids to move on to another drug. Bare in mind before this I was mostly… Continue reading My Adrenal Insufficency
Spoonie Essentials There’s so many smal things in my daily life that help me so much. It’s taken a lot to find these tools and I’m so glad I have them now! So here’s the things which help me! Electric Heating Blanket I have had an electric blanket for a few years now and it’s… Continue reading My Spoonie Essentials