Read my story about being a young person with a chronic illness. Living with Neuromyelitis Optica - a rare autoimmune disease.
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The Depression Greyzone
In honour of world mental health day I want to talk about the greyzone of depression When people ask me what depression feels like I never know what to say. It varies. Sometimes it feels like I’m drowning and I can’t escape, others there’s just a unshakeable sense that everything is pointless. For me it… Continue reading The Depression Greyzone
Progress Is Possible
i turned 18 on the 14th of September. I feel so weird about it. I can’t stop thinking about my future now. For the last 5 years I have been mostly bedbound. Only getting up for the toilet and appointments due to chronic fatigue from adrenal insufficiency and steroids. After coming off steroids in the… Continue reading Progress Is Possible
Tips On Sex And Disability
In honour of sexual health awareness week I’m writing about disability and sex. I’ve spoken to many of my disabled peers and complied some information and tips to share with you all. Intimacy can be a barrier for many people but especially if you’re disabled (see my last blog post). So here is some advice!… Continue reading Tips On Sex And Disability
The Emotional Toll Of Being Chronically Ill
Today I’m sharing my first ever guest post! Written by a blogger with EDS. Naomi is the author of www.diaryofazebra.com where she writes about chronic illness and features guest bloggers. If you’d be interested in having a guest blog on my site email me niamh.s.wed@gmail.com The emotional toll of being chronically ill is huge.… Continue reading The Emotional Toll Of Being Chronically Ill
Barriers To Intimacy With Disabilities
In honour of U.K. Sexual Health Week September 16-22nd, I am writing a few posts discussing the barriers people with disabilities face to intimacy - not just sex but general relationships. There’s many things that complicate intimate relationships as disabled people so here’s some, please check my blog again later in September to see the… Continue reading Barriers To Intimacy With Disabilities
Change, Hope & Uncertainty In Chronic Illness
Change hope and uncertainty are scary things that come up a lot during life as a chronically ill person. So let’s talk about it.
My Adrenal Insufficency
For the last 4 years I’ve been dealing with something called adrenal insufficiency caused by my steroids. It all started with increasing my immunosuppressants. My body needed more immunosuppressants but it made me severely anemic so I had to start steroids to move on to another drug. Bare in mind before this I was mostly… Continue reading My Adrenal Insufficency
My Spoonie Essentials
Spoonie Essentials There’s so many smal things in my daily life that help me so much. It’s taken a lot to find these tools and I’m so glad I have them now! So here’s the things which help me! Electric Heating Blanket I have had an electric blanket for a few years now and it’s… Continue reading My Spoonie Essentials
Review: COMPACTCATH
COMPACTCATH review I was recently sent some free catheters to try & review. The brand is called compact cath and they make well, compact catheters. These catheters are different to other designs I’ve seen since they come in this kind of disc shaped spiral which makes it super small and flat in your bag or… Continue reading Review: COMPACTCATH
Lessons In Recovery
Lessons I’ve learnt through my ED recovery thanks to the body acceptance movements: * BEING FAT IS OKAY. * Not all overweight people are unhealthy. Your BMI does not dictate how good or bad your vitals are. (Read about Health At Every Size) * Fat is just a descriptor. The word fat is only bad… Continue reading Lessons In Recovery