I love YouTube and decided to write a list of Youtubers with chronic issues because representation is important.
I’ve had my autoimmune disease since the age of four (2006). Since I was little my mum has used social media to connect to other patients and get information, because my disease is rare there wasn’t very much out there. But she found a small group of about twenty people on google hangouts, which has… Continue reading World in my hands
As someone who is in bed and pretty useless most of the time, I’ve become rather addicted to podcasts. I love hearing people’s stories and they’re a great distraction.
Even though I’m blind I’ve always loved doing art, but now sitting up hurts too much to do art. I miss doing it so much!
“I can see but I can’t SEE” In today blog post I explain what my vision is like.
Showering with a chronicnillness is one of the hardest tasks we don it’s just so exhausting. But it’s mandatory. Here’s some tips to help you.
My fear of flare ups Chronic pain is horrible. Chronic means; something negative which is long lasting. My pain is complex, I have multiple kinds all over my body. The chronic pain started when I was 10 ish due to my nerve damage from Neuromyelitis Optica. I was on gabapentin to manage it - which… Continue reading Flarophobia
Yesterday was suicide prevention day, I wanted to write but I didn’t really feel up to it. Since this is an issue everyday, I will write today. Within the chronic illness community it’s very common to feel suicidal. Usually the thought process is that we don’t want to live THIS WAY. If we could be… Continue reading Better Days Ahead | Suicide Prevention
In this society where people’s worth constructed and not just inherent, it’s so easy to feel like a failure. If you can’t work, can’t study then what is your worth based on? In my opinion so much more. Sure it’s great to contribute to the world, keep yourself busy and whatever, but are you happy?… Continue reading Spoonie, you are enough!
I wrote this a while ago, I feel like it’s a good representation of where my mind goes on my worst of days