Chronic illness, Uncategorized

Missing Amid My Mind | What dissociation feels like

  The majority of my days are spent gone. Gone from this world. Gone from myself. I’d like to say I’m just on autopilot but for the most part I’m gone. It’s a strange feeling to enter into dissociation. It’s like you’ve time traveled to an era you’ve already lived through once, but you do not… Continue reading Missing Amid My Mind | What dissociation feels like

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Chronic illness, Uncategorized

Relying On Myself

  Yesterday I entered my new home for the next 3 months during self isolation, a large open farmhouse style apartment with dark wooden beams lining the ceiling and open sky lights bringing the outside inside.  It is my cozy sanctuary.  The corner sofa has a mountain of pillows to drown in and a  soft but… Continue reading Relying On Myself

Chronic illness, Guest Blogs, Uncategorized

The Emotional Toll Of Being Chronically Ill

  Today I’m sharing my first ever guest post! Written by a blogger with EDS. Naomi is the author of http://www.diaryofazebra.com where she writes about chronic illness and features guest bloggers. If  you’d be interested in having a guest blog on my site email me niamh.s.wed@gmail.com The emotional toll of being chronically ill is huge.… Continue reading The Emotional Toll Of Being Chronically Ill

Uncategorized

Barriers To Intimacy With Disabilities

In honour of  U.K. Sexual Health Week September 16-22nd, I am writing a few posts discussing the barriers people with disabilities face to intimacy - not just sex but general relationships. There’s many things that complicate intimate relationships as disabled people so here’s some, please check my blog again later in September to see the… Continue reading Barriers To Intimacy With Disabilities

Chronic illness, Uncategorized

My Adrenal Insufficency

For the last 4 years I’ve been dealing with something called adrenal insufficiency caused by my steroids. It all started with increasing my immunosuppressants. My body needed more immunosuppressants but it made me severely anemic so I had to start steroids to move on to another drug. Bare in mind before this I was mostly… Continue reading My Adrenal Insufficency