Yesterday I entered my new home for the next 3 months during self isolation, a large open farmhouse style apartment with dark wooden beams lining the ceiling and open sky lights bringing the outside inside. It is my cozy sanctuary. The corner sofa has a mountain of pillows to drown in and a soft but… Continue reading Relying On Myself
Today I’m sharing my first ever guest post! Written by a blogger with EDS. Naomi is the author of http://www.diaryofazebra.com where she writes about chronic illness and features guest bloggers. If you’d be interested in having a guest blog on my site email me email@example.com The emotional toll of being chronically ill is huge.… Continue reading The Emotional Toll Of Being Chronically Ill
Change hope and uncertainty are scary things that come up a lot during life as a chronically ill person. So let’s talk about it.
For the last 4 years I’ve been dealing with something called adrenal insufficiency caused by my steroids. It all started with increasing my immunosuppressants. My body needed more immunosuppressants but it made me severely anemic so I had to start steroids to move on to another drug. Bare in mind before this I was mostly… Continue reading My Adrenal Insufficency
Spoonie Essentials There’s so many smal things in my daily life that help me so much. It’s taken a lot to find these tools and I’m so glad I have them now! So here’s the things which help me! Electric Heating Blanket I have had an electric blanket for a few years now and it’s… Continue reading My Spoonie Essentials
COMPACTCATH review I was recently sent some free catheters to try & review. The brand is called compact cath and they make well, compact catheters. These catheters are different to other designs I’ve seen since they come in this kind of disc shaped spiral which makes it super small and flat in your bag or… Continue reading Review: COMPACTCATH
As someone who is in bed and pretty useless most of the time, I’ve become rather addicted to podcasts. I love hearing people’s stories and they’re a great distraction.
Even though I’m blind I’ve always loved doing art, but now sitting up hurts too much to do art. I miss doing it so much!
My fear of flare ups Chronic pain is horrible. Chronic means; something negative which is long lasting. My pain is complex, I have multiple kinds all over my body. The chronic pain started when I was 10 ish due to my nerve damage from Neuromyelitis Optica. I was on gabapentin to manage it - which… Continue reading Flarophobia
Yesterday was suicide prevention day, I wanted to write but I didn’t really feel up to it. Since this is an issue everyday, I will write today. Within the chronic illness community it’s very common to feel suicidal. Usually the thought process is that we don’t want to live THIS WAY. If we could be… Continue reading Better Days Ahead | Suicide Prevention