Chronic illness, Review, Uncategorized

My Spoonie Essentials

Spoonie Essentials There’s so many smal things in my daily life that help me so much. It’s taken a lot to find these tools and I’m so glad I have them now! So here’s the things which help me! Electric Heating Blanket I have had an electric blanket for a few years now and it’s… Continue reading My Spoonie Essentials

Chronic illness, Review, Uncategorized

Review: COMPACTCATH

COMPACTCATH review I was recently sent some free catheters to try & review. The brand is called compact cath and they make well, compact catheters. These catheters are different to other designs I’ve seen since they come in this kind of disc shaped spiral which makes it super small and flat in your bag or… Continue reading Review: COMPACTCATH

Chronic illness

Flarophobia

My fear of flare ups  Chronic pain is horrible. Chronic means; something negative which is long lasting.  My pain is complex, I have multiple kinds all over my body. The chronic pain started when I was 10 ish due to my nerve damage from Neuromyelitis Optica. I was on gabapentin to manage it - which… Continue reading Flarophobia

Chronic illness, Uncategorized

Better Days Ahead | Suicide Prevention

Yesterday was suicide prevention day, I wanted to write but I didn’t really feel up to it. Since this is an issue everyday, I will write today. Within the chronic illness community it’s very common to feel suicidal. Usually the thought process is that we don’t want to live THIS WAY. If we could be… Continue reading Better Days Ahead | Suicide Prevention

Chronic illness, Uncategorized

Spoonie, you are enough!

In this society where people’s worth constructed and not just inherent, it’s so easy to feel like a failure. If you can’t work, can’t study then what is your worth based on? In my opinion so much more. Sure it’s great to contribute to the world, keep yourself busy and whatever, but are you happy?… Continue reading Spoonie, you are enough!