Chronic illness, Uncategorized

World in my hands

I’ve had my autoimmune disease since the age of four (2006). Since I was little my mum has used social media to connect to other patients and get information, because my disease is rare there wasn’t very much out there. But she found a small group of about twenty people on google hangouts, which has… Continue reading World in my hands

Chronic illness

Flarophobia

My fear of flare ups  Chronic pain is horrible. Chronic means; something negative which is long lasting.  My pain is complex, I have multiple kinds all over my body. The chronic pain started when I was 10 ish due to my nerve damage from Neuromyelitis Optica. I was on gabapentin to manage it - which… Continue reading Flarophobia

Chronic illness, Uncategorized

Better Days Ahead | Suicide Prevention

Yesterday was suicide prevention day, I wanted to write but I didn’t really feel up to it. Since this is an issue everyday, I will write today. Within the chronic illness community it’s very common to feel suicidal. Usually the thought process is that we don’t want to live THIS WAY. If we could be… Continue reading Better Days Ahead | Suicide Prevention

Chronic illness, Uncategorized

Spoonie, you are enough!

In this society where people’s worth constructed and not just inherent, it’s so easy to feel like a failure. If you can’t work, can’t study then what is your worth based on? In my opinion so much more. Sure it’s great to contribute to the world, keep yourself busy and whatever, but are you happy?… Continue reading Spoonie, you are enough!

Review

Pacifica review: easy self care

For the last year or so I've consistently used the wellbeing app Pacifica to manage my Depression and Anxiety. It includes daily tools for stress reduction and to improve your wellbeing, alongside a community. Based on Cognitive Behavioral Therapy & Meditation it is the perfect place to begin building a happier and reduced stress life. … Continue reading Pacifica review: easy self care