Uncategorized

The Power Of Having A Voice

I’m so grateful for my ability to effortlessly share my opinions without prosecution. During my college interviews this week, I have been able to be honest about my mental health and my disability, because I know it does not serve me to bottle it up. By speaking up people know how to help me can… Continue reading The Power Of Having A Voice

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Chronic illness, Uncategorized

Missing Amid My Mind | What dissociation feels like

  The majority of my days are spent gone. Gone from this world. Gone from myself. I’d like to say I’m just on autopilot but for the most part I’m gone. It’s a strange feeling to enter into dissociation. It’s like you’ve time traveled to an era you’ve already lived through once, but you do not… Continue reading Missing Amid My Mind | What dissociation feels like

Chronic illness, Uncategorized

Relying On Myself

  Yesterday I entered my new home for the next 3 months during self isolation, a large open farmhouse style apartment with dark wooden beams lining the ceiling and open sky lights bringing the outside inside.  It is my cozy sanctuary.  The corner sofa has a mountain of pillows to drown in and a  soft but… Continue reading Relying On Myself

Chronic illness, Review, Uncategorized

Review: COMPACTCATH

COMPACTCATH review I was recently sent some free catheters to try & review. The brand is called compact cath and they make well, compact catheters. These catheters are different to other designs I’ve seen since they come in this kind of disc shaped spiral which makes it super small and flat in your bag or… Continue reading Review: COMPACTCATH

Chronic illness, Uncategorized

World in my hands

I’ve had my autoimmune disease since the age of four (2006). Since I was little my mum has used social media to connect to other patients and get information, because my disease is rare there wasn’t very much out there. But she found a small group of about twenty people on google hangouts, which has… Continue reading World in my hands

Chronic illness

Flarophobia

My fear of flare ups  Chronic pain is horrible. Chronic means; something negative which is long lasting.  My pain is complex, I have multiple kinds all over my body. The chronic pain started when I was 10 ish due to my nerve damage from Neuromyelitis Optica. I was on gabapentin to manage it - which… Continue reading Flarophobia

Chronic illness, Uncategorized

Better Days Ahead | Suicide Prevention

Yesterday was suicide prevention day, I wanted to write but I didn’t really feel up to it. Since this is an issue everyday, I will write today. Within the chronic illness community it’s very common to feel suicidal. Usually the thought process is that we don’t want to live THIS WAY. If we could be… Continue reading Better Days Ahead | Suicide Prevention