Yesterday I entered my new home for the next 3 months during self isolation, a large open farmhouse style apartment with dark wooden beams lining the ceiling and open sky lights bringing the outside inside. It is my cozy sanctuary. The corner sofa has a mountain of pillows to drown in and a soft but… Continue reading Relying On Myself
COMPACTCATH review I was recently sent some free catheters to try & review. The brand is called compact cath and they make well, compact catheters. These catheters are different to other designs I’ve seen since they come in this kind of disc shaped spiral which makes it super small and flat in your bag or… Continue reading Review: COMPACTCATH
TOGETHER WE ARE STRONGER.
March is Neuromyelitis optica awareness month. This is the disease I have and I would love to share some brief info to educate you.
I’ve had my autoimmune disease since the age of four (2006). Since I was little my mum has used social media to connect to other patients and get information, because my disease is rare there wasn’t very much out there. But she found a small group of about twenty people on google hangouts, which has… Continue reading World in my hands
Even though I’m blind I’ve always loved doing art, but now sitting up hurts too much to do art. I miss doing it so much!
“I can see but I can’t SEE” In today blog post I explain what my vision is like.
My fear of flare ups Chronic pain is horrible. Chronic means; something negative which is long lasting. My pain is complex, I have multiple kinds all over my body. The chronic pain started when I was 10 ish due to my nerve damage from Neuromyelitis Optica. I was on gabapentin to manage it - which… Continue reading Flarophobia
Yesterday was suicide prevention day, I wanted to write but I didn’t really feel up to it. Since this is an issue everyday, I will write today. Within the chronic illness community it’s very common to feel suicidal. Usually the thought process is that we don’t want to live THIS WAY. If we could be… Continue reading Better Days Ahead | Suicide Prevention
Read my story about being a young person with a chronic illness. Living with Neuromyelitis Optica - a rare autoimmune disease.