My body is like the weather, you can predict it most of the time. You can plan. Take precautions. Change your plans. But some days there is a sudden downfall of rain causing a heaviness in my soul. Cold that makes me so sore I'm numb. A wind that makes my skin sting. Hail that… Continue reading Chronic Pain Is Unpredictable
“I can see but I can’t SEE”
In today blog post I explain what my vision is like.
My fear of flare ups Chronic pain is horrible. Chronic means; something negative which is long lasting. My pain is complex, I have multiple kinds all over my body. The chronic pain started when I was 10 ish due to my nerve damage from Neuromyelitis Optica. I was on gabapentin to manage it - which… Continue reading Flarophobia
Yesterday was suicide prevention day, I wanted to write but I didn’t really feel up to it. Since this is an issue everyday, I will write today. Within the chronic illness community it’s very common to feel suicidal. Usually the thought process is that we don’t want to live THIS WAY. If we could be… Continue reading Better Days Ahead | Suicide Prevention
Read my story about being a young person with a chronic illness. Living with Neuromyelitis Optica - a rare autoimmune disease.